Illinois Medicaid home care programs

Get Paid To Care For A Family Member In Illinois

Updated

Illinois runs two main Medicaid-funded programs that can pay you to care for a loved one at home: the Community Care Program (CCP) for people 60 and older, and the Home Services Program (HSP) for people under 60 with disabilities. Both let many family members become the paid caregiver — and as of 2026, CCP even lets spouses be paid.

What are the Community Care Program and Home Services Program?

Illinois does not have a single "get paid to care for family" program — it has two, split by the age of the person who needs care. The Community Care Program (CCP) is run by the Illinois Department on Aging and serves residents 60 and older who are at risk of nursing-home placement. The Home Services Program (HSP), run by the Illinois Department of Human Services Division of Rehabilitation Services (DRS, sometimes branded "DoRS"), serves people under 60 who have a severe, long-term disability. Both are funded largely through Illinois Medicaid and both are designed to keep people in their own homes instead of an institution.

The two programs work differently under the hood. HSP is a consumer-directed, individual-provider model: the person receiving care (the "customer") hires, trains, and supervises their own Personal Assistant (PA), and the state pays that PA directly through a payroll system. That is the closest Illinois equivalent to New York's CDPAP. CCP, by contrast, delivers most in-home care through licensed In-Home Services provider agencies — so a family member who wants to be paid under CCP is hired and supervised by one of those agencies rather than being a standalone individual provider.

For families, the practical takeaway is simple: if your loved one is 60 or older, you are looking at CCP; if they are under 60, you are looking at HSP. A small number of people qualify for HSP with no age cap (for example, some people with a brain injury or an AIDS diagnosis), so it is always worth asking. Both programs assess need using a standardized tool called the Determination of Need, or DON.

A landmark 2026 change reshaped CCP: Illinois now allows spouses to be paid caregivers under the Community Care Program, something that was not permitted before. That makes CCP the primary route for a husband or wife who wants to be paid for the care they are already providing to a partner 60 or older.

Eligibility for CCP and HSP

Eligibility rules apply to the person receiving care, not to the caregiver. The caregiver does not have to meet income or asset limits. Both programs use a Determination of Need (DON) assessment and both share the same $17,500 non-exempt asset limit for adults, but they differ on age.

Age (this decides which program applies)
CCP is for Illinois residents age 60 and older. HSP is for people under 60 with a disability, though certain diagnoses (such as brain injury or AIDS) can qualify a person for HSP with no age limit. If your loved one is turning 60, plan the transition early.
Determination of Need (DON) score of 29 or higher
Both programs use the DON assessment, which scores how much help the person needs with activities of daily living (bathing, dressing, transferring, toileting) and instrumental tasks (meals, medication, housekeeping). A minimum DON score of 29 is required. A higher score authorizes more service hours or a higher spending limit.
Non-exempt assets of $17,500 or less
The care recipient must have countable (non-exempt) assets of $17,500 or less if they are 18 or older. The primary home, one vehicle, and personal belongings and furnishings do not count. For HSP applicants under 18, the limit is higher (around $35,000).
Illinois Medicaid enrollment
Both programs are Medicaid-funded. Applicants must apply for and, if eligible, enroll in Illinois Medicaid. There is generally no income cap that disqualifies you outright — HSP charges customers nothing for services — but Medicaid financial rules and any required spend-down are handled during enrollment.
Illinois residency and citizenship status
The care recipient must live in Illinois and be a U.S. citizen or a qualifying non-citizen. Care must be provided in Illinois, in the person's home or community setting.
Risk of institutional (nursing home) placement
Because these are alternatives to nursing-home or institutional care, the assessment must show that without in-home help the person would be at risk of needing that higher level of care. The DON score is the primary way this is measured.

Who can — and cannot — be paid as a caregiver

Illinois is generally welcoming to family caregivers, but the rules differ between the two programs. The single biggest difference in 2026: spouses can now be paid under CCP, but spouses still cannot be paid under HSP. Below is a combined picture; confirm the specifics for the program that applies to your family.

✓ Who CAN be paid
  • A spouse — but only under CCP (the Community Care Program), new for 2026
  • Adult children (18+) of the care recipient — allowed under both CCP and HSP
  • Siblings, grandchildren, nieces, nephews, aunts, uncles, and in-laws
  • Other relatives who do not have a legal duty to provide the person's care
  • Close friends, neighbors, or trusted community members
  • A power of attorney, representative payee, or legal guardian (under CCP, if they meet the hiring and training requirements)
✕ Who CANNOT be paid
  • A spouse under HSP — spouses are a "legally responsible relative" and DRS cannot pay them
  • A parent of a minor child who is the one receiving HSP services
  • A minor child of the person receiving services (must be an adult to be a paid caregiver)
  • Anyone who cannot pass the required background check
  • Anyone the care recipient (or, for CCP, the In-Home Services agency) does not choose to hire

Pay, hours, and how you are paid

Pay depends on which program you are in. HSP publishes a statewide Personal Assistant wage that is set through a union contract, while CCP pay flows through an In-Home Services agency that employs the caregiver. Hours are driven by the person's DON score and care plan.

Hourly pay

Under HSP, Personal Assistants are paid a statewide base wage set by the SEIU Healthcare Illinois contract with the state. As of January 1, 2026, the base HSP Personal Assistant wage is $19.50 per hour, scheduled to rise to about $20.00 per hour on July 1, 2026. Long-tenured PAs can earn more through seniority add-ons — for example, a PA who has averaged full-time hours for several years can reach roughly $20.75 per hour or higher. Under CCP, the state reimburses In-Home Services provider agencies about $30.80 per hour of care (2026 statewide rate); the agency employs the caregiver, so the caregiver's actual take-home wage — typically in the mid-teens to around $20 per hour — is set by that agency after it covers taxes, supervision, and overhead. That is why we show a blended $16–$21/hour range across both programs.

Hours and scheduling

There is no single fixed number of hours — the amount of paid care is tied to the DON score and the care plan. Under HSP, the DON score sets a "Service Cost Maximum," a monthly dollar budget the customer can spend on PA hours and other services. Higher needs mean a bigger budget and more hours. Under CCP, the assessment similarly determines how many hours of in-home service are authorized. Many family caregivers are approved for part-time hours; those caring for someone with intensive needs may be approved for substantially more.

Overtime rules

HSP Personal Assistants are subject to workweek and overtime rules, and the state limits how many hours a single PA can be paid for in a week before overtime or scheduling limits apply. Because the Service Cost Maximum is a fixed budget, working overtime uses up the monthly budget faster. Under CCP, overtime and scheduling are managed by the employing In-Home Services agency in line with Illinois labor law. In both cases, some families use more than one caregiver to cover all the needed hours.

How to apply in Illinois

  1. Figure out which program fits based on the care recipient's age. If they are 60 or older, start with the Community Care Program (Department on Aging). If they are under 60 with a disability, start with the Home Services Program (DRS / DoRS).
  2. Make the first call to get the intake and DON assessment started.
    • For CCP: call the Illinois Department on Aging Senior HelpLine at 1-800-252-8966 (TRS 711), which connects you to your local Care Coordination Unit (CCU)
    • For HSP: contact your local DRS office or use the online DRS Web Referral; the DRS help line is 1-877-581-3690 or 1-800-843-6154 (Voice), 1-866-324-5553 (TTY)
  3. Complete the Determination of Need (DON) assessment. A care coordinator (CCP) or DRS rehabilitation counselor (HSP) visits the home to score the person's needs. A score of 29 or higher is required to qualify.
  4. Apply for and enroll in Illinois Medicaid if the person is not already enrolled. Gather proof of Illinois residency, identification, Social Security number, and financial documents showing non-exempt assets are $17,500 or less.
  5. Build the care plan and get the caregiver approved.
    • HSP: the customer and DRS counselor jointly write a service plan; the customer then hires the Personal Assistant, who completes employment and payroll paperwork
    • CCP: the CCU authorizes in-home service hours; the family member is hired and supervised by a licensed In-Home Services agency, must pass a background check, and completes required pre-service training (commonly 24 hours) before starting
  6. Start work and get paid. HSP Personal Assistants submit time through the state's individual-provider payroll system on a set schedule; CCP caregivers are paid by their employing agency. Eligibility decisions are generally issued within about 60 days, and paid care can begin once the plan is approved and the caregiver is cleared.

Illinois paid caregiver frequently asked questions

Can I get paid to care for my spouse in Illinois?

Yes — but only through the Community Care Program (CCP), and only as of 2026. Illinois changed its rules so that spouses can now be paid caregivers under CCP, which serves people 60 and older. This was a major shift, because for years a husband or wife could not be paid for caring for their partner. To do it, the spouse must be hired and supervised by a licensed In-Home Services agency, pass a background check, and complete the required pre-service training. The Home Services Program (HSP), which serves people under 60, still does not allow spouses to be paid — under HSP a spouse is considered a "legally responsible relative," and DRS cannot pay legally responsible relatives. So the age of the person needing care decides your path: if your spouse is 60 or older, CCP is your route; if they are under 60, you would need a different arrangement, such as a private-pay or veteran-directed option.

How much does it pay in 2026?

It depends on which program you are in. Under the Home Services Program (HSP), Personal Assistants are paid a statewide base wage set by the SEIU Healthcare Illinois union contract: $19.50 per hour as of January 1, 2026, scheduled to rise to about $20.00 per hour on July 1, 2026. PAs with years of service can earn more through seniority add-ons, reaching roughly $20.75 per hour or higher. Under the Community Care Program (CCP), the state reimburses In-Home Services provider agencies about $30.80 per hour of care, but the caregiver is an employee of that agency — so your actual take-home wage (typically the mid-teens up to around $20 per hour) is set by the agency after it covers payroll taxes, supervision, and overhead. Ask any CCP agency directly what it pays its aides. Across both programs, most family caregivers land somewhere between about $16 and $21 per hour.

How long does approval take in Illinois?

Plan on roughly 60 to 90 days from your first call to your first paycheck, though it can move faster or slower depending on your situation. Illinois generally issues an eligibility decision within about 60 days of a complete application. The steps that take the most time are scheduling the in-home Determination of Need (DON) assessment, confirming Illinois Medicaid enrollment, and — for the caregiver — completing a background check and any required training. If your loved one is not yet enrolled in Medicaid, add time for that application. You can speed things up by gathering documents in advance: proof of Illinois residency, a photo ID, Social Security number, and financial records showing non-exempt assets are $17,500 or less. Calling early and staying in close contact with your Care Coordination Unit (CCP) or DRS counselor (HSP) is the best way to keep things moving.

What training or certification do I need to be a paid caregiver?

You do not need a nursing license, a CNA certificate, or prior professional experience for either program. Under the Home Services Program (HSP), the Personal Assistant is trained by the customer on the specific tasks that person needs help with — Illinois deliberately keeps this consumer-directed, so there is no clinical exam. You will complete standard employment and payroll paperwork and sign off on materials about reporting hours and recognizing abuse or neglect. Under the Community Care Program (CCP), because you are hired by a licensed In-Home Services agency, the agency handles training. That commonly includes a pre-service training requirement (often around 24 hours) plus a background check before you can start. Neither program expects you to arrive as a trained professional — the whole point is to let a trusted family member or friend do the caregiving with proper support behind them.

What is the difference between CCP and HSP?

The main difference is age. The Community Care Program (CCP), run by the Illinois Department on Aging, serves people 60 and older. The Home Services Program (HSP), run by the Department of Human Services Division of Rehabilitation Services (DRS/DoRS), serves people under 60 who have a severe, long-term disability. They also work differently: HSP is consumer-directed, meaning the person receiving care hires and supervises their own Personal Assistant and the state pays that PA directly through a payroll system. CCP delivers most in-home care through licensed In-Home Services agencies that employ and supervise the caregiver. Finally, the family rules differ — CCP allows a spouse to be paid (new in 2026), while HSP does not. Both programs use the same Determination of Need (DON) assessment, require a DON score of at least 29, and share the same $17,500 non-exempt asset limit for adults.

What is a Determination of Need (DON) score and why does it matter?

The Determination of Need, or DON, is Illinois's standardized assessment of how much help a person needs to stay safely at home. A care coordinator (for CCP) or a DRS rehabilitation counselor (for HSP) visits the home and scores the person's ability to handle activities of daily living — bathing, dressing, transferring, toileting, eating — and instrumental tasks like preparing meals, managing medications, and housekeeping. Both programs require a minimum DON score of 29 to qualify. The score does more than open the door: it also drives how much paid care is authorized. In HSP, the DON score sets a monthly dollar budget called the Service Cost Maximum, which the customer spends on Personal Assistant hours and other services. In CCP, a higher score similarly supports more authorized in-home service hours. So the more assistance a person genuinely needs, the higher the score and the more paid caregiving hours the family can receive.

Can my parent's house or income disqualify us?

Usually not for the reasons families fear. The asset test looks at non-exempt (countable) assets, which must be $17,500 or less for an adult. Critically, the primary home does not count, one vehicle does not count, and personal belongings and household furnishings do not count. So a parent can own their home and still qualify. On income, there is no simple income cap that automatically disqualifies you — HSP charges customers nothing for services, and CCP eligibility is tied to the DON assessment and Medicaid rules. Because both programs are Medicaid-funded, your loved one does need to enroll in Illinois Medicaid, and Medicaid's own financial rules (including any spend-down for people with higher income or savings) are handled during that enrollment. If assets are over the limit, a benefits counselor or elder-law attorney can often help with legitimate planning. Do not assume you are disqualified until an assessment is done.

Who runs these programs and who do I actually call?

The Community Care Program is administered by the Illinois Department on Aging, which delivers it locally through a network of Area Agencies on Aging and Care Coordination Units (CCUs). To start CCP, call the Department on Aging Senior HelpLine at 1-800-252-8966 (TRS 711); they will route you to the CCU that covers your area, and that CCU handles your DON assessment and care plan. The Home Services Program is administered by the Illinois Department of Human Services through its Division of Rehabilitation Services (DRS, also branded DoRS), which operates local offices across the state. To start HSP, contact your local DRS office, use the online DRS Web Referral, or call 1-877-581-3690 (or 1-800-843-6154 Voice / 1-866-324-5553 TTY). For CCP, the caregiver is hired through a licensed In-Home Services agency; for HSP, the customer hires the Personal Assistant directly and the state handles payroll.

See also: Illinois caregiver guide

For all the ways to get paid to care for a family member in Illinois — including CCP & HSP, VA programs, long-term care insurance, and more — read the full Illinois guide.